March 19, 2013

Lupus Research Leaders Join Forces to Bring Vital Biomedical Research Issues to Congress
Together Voice Critical Need for Federal Appropriations to Support
Lupus Research and Advance New Treatments

 

“Now is the moment to be heard, when critical decisions will affect the future of biomedical research, an urgent need that cannot wait.”
                                                   -Margaret Dowd, president and CEO of the Lupus Research Institute
 

Without appropriate funding for lupus research today, there will be far fewer advances tomorrow. Safer effective treatments and a cure will be much slower in coming without a strong biomedical enterprise fueled and led by the National Institutes of Health (NIH). And the threat of stagnation is very real as sequestration will dramatically cut funding for scientific research.

To update the U.S. Senate and House of Representatives on the pressing needs of the lupus community, America’s leading proponents for lupus research came together today to hold a Congressional briefing.

The Lupus Research Institute (LRI) in collaboration with the Alliance for Lupus Research and the American Autoimmune Related Diseases Association co-hosted the briefing along with long-time lupus champion Senator Frank Lautenberg (D-NJ) and the Congressional Lupus Caucus.

Top U.S. experts in the field painted the stark picture of why lupus warrants solid Congressional support.

Dr. Robert Katz powerfully conveyed the devastation this prototypical autoimmune disease causes, sharing his personal experience treating hundreds of patients at Rush University Medical Center and Northwestern Memorial Hospital in Chicago.

Dr. Mary Crow, Physician-in-Chief at Hospital for Special Surgery in NY noted, “We must protect the invaluable progress of lupus research over the last decade and cannot lose ground at this pivotal juncture when solutions to this confounding disease are finally within reach.”

Dr. Betty Diamond of The Feinstein Institute for Medical Research and Albert Einstein College of Medicine in NY documented the need to educate healthcare professionals and the lupus community about the nature and extent of racial disparities in lupus. "If patients of all ethnicities and races have the opportunity to participate in clinical trials, we will have the data we need to deliver new treatment options more quickly."

Time to Speak Out
In addition to hosting the briefing, the LRI and patient advocacy groups from throughout the country visited Congressional representatives, conveying three key requests for federal support:

Visit our website or our Facebook page to send a strong message to Congressional legislators.

About the LRI
The world’s leading private supporter of innovative research in lupus, the LRI champions scientific risk-taking in the hunt for solutions to this complex and dangerous autoimmune disease.

Lupus Research Institute
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e-mail: Lupus@LupusNY.org