Representatives Tom Rooney (R-FL), William Keating (D-MA), Ileana Ros-Lehtinen (R-FL) and Jim Moran (D-VA) recently launched a new Congressional Lupus Caucus on Feb. 7. The Caucus is intended to provide a forum for Members of Congress and their staffs to actively engage in a dialogue to help raise visibility of the disease. Future efforts will likely be aimed at discussions of actions to improve the quality of life for people with lupus and their caregivers through supporting the advancement of lupus research and increasing awareness of lupus among the public and health professionals.
This Caucus provides an important opportunity for policymakers to better understand the challenges that lupus patients face in their everyday lives and learn more about the research behind the disease, its diagnosis and treatment. It also offers an important new forum for patients and their advocates to work with Congressional leaders.
Lupus is an acute and chronic autoimmune disease in which the immune system is unbalanced, causing inflammation and tissue damage to virtually any organ system in the body.
It can cause seizures, strokes, heart attacks, miscarriages, and organ failure. Lupus annually costs the nation an estimated $31.4 billion in direct and indirect expenditures.
Currently there are few therapeutic options for this often misdiagnosed and unpredictable autoimmune disease. Lupus affects 1.5 million Americans, 90 percent of whom are women, primarily in their childbearing years. Women of color are at greatest risk but older women, men and children can also be affected.
We strongly urge you to join the Congressional Lupus Caucus as an important step in raising awareness of this debilitating disease among patients, healthcare professionals and researchers.
To join the Congressional Lupus Caucus, please contact Jessica Moore in Rep. Tom Rooney’s office at firstname.lastname@example.org or (202) 225-5792 or Naz Durakoglu in Rep. Keating’s office email@example.com or (202) 225-3111.
The Lupus Research Institute (LRI), the world’s leading private supporter of innovative research in lupus, pioneers discovery and champions the scientific creativity that is bringing new solutions to this complex and dangerous autoimmune disease. The LRI Coalition of patient advocacy organizations leads nationwide outreach, service and support to alleviate patient suffering while advancing the cure.
For more information, contact Brent Jaquet, CRD Associates, 202 484-1100 or firstname.lastname@example.org