The Lupus Research Institute (LRI) National Coalition, the nation’s leading lupus patient service organization representing the major urban centers across America, advocates on a national level on behalf of our patient and provider communities.
Our National Coalition of independent state and local lupus organizations, many in urban centers such as New York, Chicago, Los Angeles, and San Francisco
- speak as a united “patients’ voice” for lupus research on Capitol Hill
- raise awareness and understanding of lupus
- care for people with lupus
- link people with lupus to clinical trials.
LRI National Coalition
Lupus Organizations Covering the Coasts and Major Urban Centers
Caring for people with lupus in Los Angeles and the greater southern California area.
“As part of the National Coalition, we feel very connected to the scientific community and informed about advances. We’re united, yet each have our own distinctive voice. And we’re stronger because of it!”
Lupus Foundation of Northern California
Caring for people with lupus in California and beyond.
“Our spectrum of services would not be complete without the benefi ts of novel research, which is crucial in bridging the gap between life with lupus and life without lupus. It is for this reason that LFNC has been actively involved and continues to support the Lupus Research Institute’s National Coalition.”
Lupus Foundation of Southern California
Caring for people with lupus in the southern California counties of Orange, Riverside, San Diego, and Imperial.
“Our greatest hope? A cure. If it doesn’t happen in the next 10 years we hope medications will be developed that would assist lupus patients without any side effects.”
“Without the Lupus Research Institute, our project would have stopped—and a fundamental discovery in immunology would not have happened.”
– Greg Lemke, PhD, professor of Molecular Neurobiology at the Salk Institute in La Jolla. With an Institute grant, Lemke identified an essential switch that controls immune system inflammation.
Lupus Foundation of Colorado
(303) 597-4050 or (800) 858-1292
Caring for people with lupus in Colorado.
Lupus Society of Illinois
(312) 542-0002 or (800) 258-7872
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
Michigan Lupus Foundation
(586) 775-8310 or (800) 705-6677
Caring for people with lupus in Michigan and parts of Northern Indiana.
“No one has all of the answers in lupus. Cooperation and the exchange of ideas is important to finding new ways to help people and to raise our collective voices so that people with lupus are heard.”
Lupus Foundation of Florida
(727) 447-7075 or (800) 684-9276
Caring for people with lupus across Florida.
“We are proud to be an LRI Coalition member as it allows us to not only serve patients in Florida, which has always been our primary focus, but now we are able to collaborate with other members with the same strong patient focus. The Coalition gives us the opportunity to fund top-notch, cutting edge lupus research while being kept up-to-date on the latest advancements towards treatment and the cure.”
Lupus Support Network
(850) 478-8107 or (800) 458-8211
Caring for people with lupus in 21 counties, including Mobile, Escambia in Alabama, and Leon (with Tallahassee) in Florida.
“The National Coalition gives us a powerful voice where otherwise we may not be heard by the public, those in politics, and those in medical research.”
“Cutting edge research has been made possible by the Institute funding high-risk projects.”
– Martin Weigert, MD, PhD, University of Chicago
The Lupus Foundation of Pennsylvania
Pittsburgh: (412) 261-5886; Harrisburg: (717) 671-9515; Erie: (724) 962-0368; Scranton: (570) 558-2008
Caring for people with lupus in 61 counties in Pennsylvania.
“Through the National Coalition we get collaboration, national-level advocacy and awareness, and lupus literature and materials and information we would not otherwise have easy access to.”
S.L.E. Lupus Foundation
(212) 685-4118 or (800) 74-LUPUS
Caring for people with lupus in the New York metropolitan area and the nation.
“For 40 years, we’ve been here in the metropolitan New York area to help people with this illness stay on their feet. Today we’re on the cusp of research breakthroughs that may finally tell us why lupus happens and what can be done to prevent or stop it. With our partners across the nation and the knowledge that some of the most brilliant researchers are on the hunt for answers in Texas, Florida, Maine, Washington, Colorado—we have realistic hope that tomorrow will be different for people with lupus.”
Lupus Alliance of America, Inc., Long Island/Queens Affiliate
(516) 783-3370 or (800) 850-9000
Caring for people with lupus in the New York counties of Nassau, Suffolk, and Queens.
“Our greatest hope? While we are always hoping to find a cure and go out of business, the reality is that this is the most promising time for better treatments and medications for lupus in years.”
“The Institute fills a really remarkable and unique place because it is willing—indeed its mandate is—to fund research that has the potential to entirely change the face and the future of science on this subject (lupus). Through its annual support, the LRI strengthens the lupus research landscape and moves novel concepts forward to secure large-scale federal funding.”
– William E. Paul, MD, chairman of the LRI Scientific Advisory Board
Lupus Foundation of Genesee Valley NY
Caring for people with lupus within the Genesee
Valley region of New York.
Lupus Foundation of Southern New York
(607) 772-6522 or (800) 33-LUPUS
Caring for people with lupus in counties of New York State west of the Catskill Mountains.
Lupus and Allied Diseases Association, Inc.
formerly Lupus Foundation of Mid & Northern NY, Inc.
(315) 829-4272 or (866) 258-7874
Advocating for those affected by lupus and allied diseases through awareness and research program initiatives to improve quality of life.
Kathleen Arntsen, President/CEO of Lupus and Allied Diseases Association, Inc. (formerly Lupus Foundation of Mid & NNY) presents a generous donation of over $20,000 to Lupus Research Institute Board Co-Chairs Jack Lavery (left) and Robert Ravitz (right) along with Robert’s daughter Annie. As a member of the LRI National Coalition, the Lupus and Allied Diseases Association has contributed over $270,000 to advance the innovative work of the Lupus Research Institute.
Thank you so much Kathleen and all your supporters!
Lupus Alliance of America, Inc., Upstate New York Affiliate
(716) 835-7161 or (800) 300-4198
Caring for people with lupus and their families in central, northeastern and western New York.
Lupus Foundation of New England
(508) 872-5200 or (877) NO-LUPUS
Caring for people with lupus in Massachusetts, New Hampshire, and Rhode Island.
“Together as a National Coalition we are a strong voice promoting crucial and exciting medical research. The Coalition also gives us a national presence and an opportunity to share best practices with professional and experienced colleagues.”